Sunday, December 6, 2009

Plan of Action

This Friday we spent almost 5 hours with the wonderful people that work at St. Joseph’s Cancer Center in Bellingham. We received a ton of information about the treatment options and the overall process my mom will be facing. Learning that my mom has cancer has brought on a flood of feelings and concerns for the future. The people at St. Joseph’s Cancer Center understand just how overwhelming this can be and are helping us learn as much as possible about what we may experience. Right here in Bellingham they offer the best available technology, techniques and state-of-the-art equipment available to treat cancer. The staff have already been so supportive and uplifting to deal with.

The very good news is that the prognosis that came with my mom’s diagnosis really is much more positive that we had originally hoped for. After meeting with several different oncologists, we chose Michael Taylor (Radiation Oncologist) to monitor and plan my mom’s treatment. She liked his “warm & fuzzy” bedside manner and the fact that he brings in his golden retriever to the office from time to time  Dr. Taylor is very optimistic because her tumor was so small, was removed completely and my mom is in such good health to begin her course of treatment. We have an initial plan to begin her first radiation treatment starting December 10th. Radiation therapy will be 5 days a week and continue for 6 weeks. We also were told that chemotherapy is actually very effective in treating this type of brain cancer. A 4-6 week course of chemotherapy will follow the radiation therapy. Frequent MRI’s will be done throughout the first couple months of treatment, to keep an eye on any tumor regrowth but at this point the doctors don’t expect to see another tumor popping up any time soon. During treatment she also has access to some pretty great alternative therapies including a dietician, massage therapist and acupuncturist.

It is important for you all to know that we are still actively pursuing other opinions and specialists for further treatment options down the road. First of all we have already requested a 2nd reading of the tumor pathology report to be sent to UW. Unfortunately even after triple checking everything, mistakes are still made in medicine and we want to make sure we know for sure exactly what kind of cancer we are dealing with. Also, St. Josephs has already presented to us the option for my mom to participate in an ongoing clinical trial for glioblastomas. We will be asking lots of questions and be doing some extensive research about this trial before making a decision about this course of treatment. But it is so wonderful to know that we have OPTIONS! Even just by word of mouth we are hearing about new treatments that have worked for other brain cancer survivors and we are getting more and more hopeful for a positive outcome.

Here is a personal message from my mom…
“Thank you EVERYONE for all your love, support and healing words. I promise I am thinking about all of you just as much as you have been thinking about me. Please know that all of your phonecalls, emails and blog comments mean the world to me! Just because I haven’t been able to speak with you or see you yet, doesn’t mean that I haven’t been strengthened and uplifted by your thoughts and warm gestures. I’m feeling stronger everyday and my family wants me to preserve my energy for starting my first round of treatment next week. I want to reinforce the POSITIVE outlook we are choosing to have for the future. Love you all!!!”
-Tricia

We hope that by sharing this information with all of you will help you feel more connected to our family and give my mom continued strength on our journey.
Please feel free to email me at Tanisita16@aol.com with any more resources or medical contacts that could be of use to my mom. Feel free to visit the St. Joseph Cancer Center website www.peacehealth.org/cancer. The more we learn the more empowered we become to help my mom fight this battle.

17 comments:

  1. Tanis, thank you so much for the update. It is so reassuring to be informed. I am praising God for this positive news. Love you all, Auntie Nancy

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  2. Thank you for the update! I knew Tricia would pick a doctor that had a dog!!! I am praying for you and keeping you close to my heart. LOVE LOVE LOVE all of you Smiths!
    Nancy Moore

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  3. I love you, Trisha! You are TOTALLY in my prayers. As a Buddhist, I believe no illness can be an obstacle. You give so much love and encouragement, how can it not manifest and return to you? Remain joyful, friend.

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  4. Tanis- Please give your mom a hug from the Lawsons! WE are sending positive thoughts and prayers your way. Be strong for your mom.
    Lots of Love, Amy Lawson

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  5. Trish, sending positive energy your way. Wish you the best. Thank's to your family for the update. Keep strong. Your in my prayers,
    Joan Marsh

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  6. Tricia ---

    You are definately in our prayers!! We're looking forward to having you come back to the SHQS library!! We're praying for your whole family to stay strong and healthy too. Glad for all the good news!
    Tracy Shaw (SQHS library)

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  7. Dear Tricia, Jim, Tanis, and Taryn,
    There is so much in this latest blog to feel happy and hopeful about! You are doing all the right things, and doing them so well. As you begin treatment, Tricia, you have such an incredible team standing with you. We're right there, too. Count on it. :)Tanis, your blog is remarkable, honey. You are doing us all such a service, but especially your Mom, when you allow us to be with you in spirit through your informative, sweet, and beautifully written accounts of the journey.
    Love and a hug to you all,
    Laurie and Bob

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  8. Hi Trish,
    Know that all of us over here at Alderwood have been thinking of you and sending all of our positive thoughts your direction.
    Love, Andrea and Kent Quigley

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  9. Tricia,
    I'm sending all my positive thoughts and prayers your way. Your positive attitude and amazing spirit will be no match for cancer! Tanis, great job on this blog, hugs to you all,
    Debbie Knudsen(SqHS)

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  10. Tricia,
    You have such a great team taking care of you- Jim, Tanis and Taryn! And now it sounds like you're putting together another great team to help you fight this. We (playgroup) are all right here praying for you and we are ready to help in any way we can. We will continue to ask Tanis when we can be of help.
    We love you and look forward to when we can come and give you hugs!
    Thank you Tanis for keeping us included in this journey. You're doing such a great job with the blog.
    Love, Anne C

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  11. Tanis,
    Thank you for the update. My heart isnt hurting as bad now. Seem's your are doing everything right. I am sending you some information fron someone that had the same tumor. You are all in our prayers and GO TEAM!
    With Love
    Heidi & family

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  12. Dear Tricia, Jim, Tanis and Taryn,

    Just want you all to know that you were in my thoughts this week as you began treatments, Tricia-I was hoping all went smoothly and you are feeling heartened by beginning the fight. We are lighting a pretty candle, made by women in Honduras in a program that supports them, in your honor, every day. It shines beautifully for you and carries our prayers and love for your healing and strength.

    Laurie and Bob

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  13. Hey Trish,
    Our thoughts and prayers from Alderwood are with you and your family. We all hope that you have a speedy and full recovery. Hey, I may need a sub and who can I call? Melinda

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  14. Tricia & Family-

    First, I am so very proud of all of you. Family is so important and the strength and unity your family carries and displays is an amazing thing. I am so blessed to be part of ALL of your lives, and especially blessed to see the courage and strength that you have Trish. I am SO proud of you! Keep up the positive, optimistic attitudes! My thoughts and prayers are with you Trish and your entire family every single day. I love you guys SO much! You take care, keep smiling and laughing, its wonderful for the soul! :)

    Love you,
    Stephanie Bason

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  15. Tricia and family, thanks so much for this blog, its a great way to share information and allow people who care about you all to share our feelings. I am thinking about you all, and clearly you are doing absolutely everything right. Hang in there, be strong and know you are all loved. Thanks
    Kris Creasey

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  16. Tricia,
    You are so very blessed to have such a great support system. All the Methodists, Lutherans, and Roman Catholics in our area are praying for you to beat this. We all love you.
    Edward, Sandy, Paul, & Katrina

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  17. Dear friends
    Positive thoughts and everflowing prayers surround you all. Thanks so much for keeping us informed and in touch. Love you all
    bucky and lo

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